What does Congenital mean?
Congenital means 'born with' and/or 'from birth'.
Sometimes a CHD can go undetected until adulthood but nowadays the majority are
detected at birth. With modern medicine these defects are usually corrected
with surgery. Some babies receive their first open heart surgery at just a few
hours or days old.
How common is it?
Congenital Heart Defects are the Number One birth defect
in the UK affecting 8 out of every 1,000 live births – that’s almost 1%.
Unfortunately CHD is also the Number One cause of death from a birth defect,
killing twice as many children as cancer every single year.
Types of CHD
There are 35+ known types of CHD, which can be present in
almost any combination, so that every person’s defect is very different. CHD's can be fixed, often via multiple open
heart surgeries, but cannot be totally cured. This means the heart must be
monitored by cardiologists throughout life.
How many people are affected?
It has been estimated that there are currently 250,000
adults with CHD in the UK, approximately 1,000,000 in the US and similar
numbers in proportional terms in Europe and the rest of the world.
Even so, you probably think that you don't know anyone
with a CHD…
Wrong!
You know me (or in any case are reading my blog!) and, unless you look very closely, you won't be able to see my scars - even my new ones from June 2012 are pretty faded now!
My CHD is called Tetralogy of Fallot (ToF) and it occurs
in approximately 400 cases per one million live births. It consists of 4
defects, which are Pulmonary stenosis, VSD (ventricular septal defect), right
ventricular hypertrophy & overriding aorta.
Picture from www.heartbirthdefect.com
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